My night consisted of developing a sore throat, cough and sniffles like you wouldn’t believe. Since Ezra loves to give kisses now (aka just slobber running all over your face), I have gained this icky cold from him. Dustin told me we sound like zombies off The Walking Dead when we sleep because we can’t breathe correctly.
I had to stay home today with him and GOSH no one told me that when you become a mother, it truly doesn’t matter when you’re sick. You can’t sit in bed while your mommy brings you fresh cooked soup with crackers and some 7-Up like in the good ole days. You literally have to get up, put on your big girl panties, make gobs of hot tea, shove some Kleenex in your nose and deal with that crying baby that wants to be held 24/7 due to being sick. Mommin’ is no joke.
Needless to say, our day didn’t consist of much. In fact… let me tell you the few things we did today:
- We received Ezra’s formula through mail. I am so appreciative for the company we go through to get this. They are easy to work with, it doesn’t take long to get through to them if I have a question and they are so, so, so nice. Ezra has been on a formula mixture of Periflex formula and Gerber Good Start for a long time now. He seems to do fine with it. Our routine is normally making it in the morning before we leave for work. We have a certain recipe his dietician gives us. We mix however many scoops she tells us of each formula then add water to make however many ounces he is allowed. Usually Dustin will make this due to the fact that I’m terrible at getting up in the morning.
- We tried getting Ezra to eat his baby foods. It wasn’t working out so well because when he is sick, he just does not want to eat. So here I have pictured what we personally do to track his PHE intake. We’ll go buy the foods and when we get home I immediately get out the “How Much PHE?” book, find the PHE mg count and then write it directly on the packaging.
This makes it easy to grab and track. Right now Ezra is allowed up to 270 mg of PHE intake. By the way, the ones pictured are Ezra’s favorite to eat. Apple Blueberry and Sweet Potatoes, mmm. We are just now getting started into transitioning to more solid foods such as fresh bananas, avocados, squash, etc. So wish us luck!
- Other than that, I went to the doctor and tried to clean our apartment as much as possible. Our room looks so cozy now!
I just wanted to give you guys a bit of insight into what we feed Ezra and what kind of formula he gets most importantly.
As a parent of a PKU child, when you go to the store for the first time to buy baby foods, it is hard. Or at least it was for us. I mean, I think we were on that baby food aisle for over an hour just trying to figure out how this whole system
works. I was so worried I would do something wrong or get the wrong thing and then his levels when we take his blood would just be out of whack. My mind was going crazy thinking about it all! Just know that it does get easier and it does make you feel like you are mom of the year when levels come back in a good range. In case you are wondering how we track levels, Dustin and I every Sunday take his blood by pricking his heel. Ezra used to do this loud shrieking cry that would make you freak out going OH NO WHAT I HAVE I DONE, but now he is a big boy and doesn’t cry a bit!
Anyway, I’m sorry this post wasn’t too exciting. I’m going to be posting what we are bringing to Thanksgiving coming up (with pictures) sometime soon.
It will be a PKU friendly recipe!
If you guys have questions feel free to leave a comment or email me. I’ll try to answer back as soon as possible!